The Short List
Angelman Syndrome Foundation  630-734-9267
CHARGE Syndrome Foundation 800-442-7604
Cornelia de Lange Syndrome Foundation, Inc. 800-223-8355
The Magic Foundation 708-383-0808
For children with failure-to-thrive and other diseases or conditions affecting growth.
MAAPS 219-662-1311
More Advanced Persons with Autism, Aspergers and PDD
The National Fragile X Foundation 303- 333-6155
Hydrocephalus Association 415-732-7040
National Coalition for PKU and Allied Disorders 877-996-2763

The Prader-Willi Syndrome Association

 800-926-4797
International Rett Syndrome Association

301-856-3334

800-818-RETT

National Tay-Sachs and Allied Diseases Association   800-906-8723
Tourette Syndrome Association 718-224-2999
National Tuberous Sclerosis Association 800-225-6872
Turner Syndrome Society 800-365-9944
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2002 Baltimore HealthCare Access (BHCA)  Updated 11/29/04